3 Too Many

Monday 9 July Ramble

Day 22 of 28 Treatment Free – well since the meeting with the Chemo doc today this has changed to be Day 22 of 26 Treatment Free.

Welcome to a new day! Drifting on & off since about 5ish but give in to discomfort at 6 – which is fine.  Clear headed feeling too – hell its great to feel like this – just need to get the body back in order (fitness wise) and it’ll be watch out world I’m back.  So far today rates as a 8/10 mentally.  Also having thought a lot about the frustration and emotional feelings – well they’ve had their time in the sun, so to speak, over the past week & a bit so I’m over them as probably you folk are as much over them been bleated on about, so they have now been suppressed to the depths of the dark places where they need to be.  The ‘suck it up Princess’ attitude is back for myself and others – so if you don’t like it or feel it is the right attitude then either stop reading or find a cure cause this is how I’m dealing with it.  One day I’ll be dead (we all will be), but until then this blog is to let you know how it is traveling there physically and mentally, and with the comments from you readers how the support – even the smallest comments) is the greatest medicine that I can have.  Until then though I have the longest fight in the supported battle (Chemo) with these 3 unwanted add on’s starting a week today, so have my game face on already and mentally are ready to go.

There’s the waffle fresh from the sleep and before the drug muddled fuzziness of the day kicks in, so it is as fresh as it can get  from the brain.  Have brekky and drugs now and get ready for work.  Have to be ready to roll early today as the boys are off to camp for a week so have to drop them off before heading to work.  Deliver the boys – a few nervous moments as they sus out the others, but Jacob knows a couple of the boys so all good.  Lachie seems relaxed too.  Say bye to the lads, and head to work.  Busy morning getting a change done – but the head is in a great place so able to cope with it well.

Picked up at 1:45ish as off to Chemo Doc appointment.  Have time to stop by the paint shop to pick up a paint swatch as the colour the lounge is painted does not look like what was asked for.  Off then to the hospital for the appointment.  Sue has a stand up with a car park queue jumper.  Bloody foreigners!  Why I have to queue?  Go figure – cause you do in a car park that goes one way and there is 4 cars already waiting for parks.  It’s ok – have her cell number (her car is for sale) and rego dumb tart – ggrrr!  In for the eternal wait at the hospital.

Doctor is only 30 mins late today.  Meeting goes well – seems that the plan has changed a bit from when I meet the registrar about 4 weeks ago.  The new Chemo plan is 5 days of high strength Chemo (now 300mg per day – previously it was 120mg) then 23 days off – so 5 in 28 – starting this Friday too not Monday as I was told. Also discussed the need to be on the anti-seizure pills, and the steroids.  Doc has listened and agreed to a  plan of getting me off both  – steroids first then anti- seizure ones – but over about 1 month.  Any side effects then I am to go back to the levels again, and they will be monitoring through blood tests.  Travel is off the cards still until the next meeting with the Doc in about 3 weeks time – when I should be about ready to get off the steroids altogether.  The new plan sounds great to me – though I know it will be a tough road to get down – but well ready for it.

Off then to Hoon Hay Road (via the chemist to drop off the 2 pages of prescriptions for the next lot of treatment – aren’t I lucky), to meet EQR & the Builder about the upstairs floor slumping and the paint colour in the lounge.  Get there just in time to meet the other builder and go over the brick repairs outside that they have missed.  THe paint is then checked against the colour swatch and it is shown to be wrong – so a repaint of the lounge now going to happen.  Lastly the floor.  Nick comes over to listen in and check the floor too (he is a qualified builder and tutor at the Polytechinc).  Seems that when the house was built a couple of odd things have been done to try to level the floor up.  But there is also EQ damage so they are going to open more of the floor up then repair it to level again.  Happy with the meeting and the way work is progressing.  Home to second home then.

Odd not having the boys around.  Feeling fan bloody tastic still so have a small bourbon.  Get dinner ready – thanks Pam & Karl.  Get on with finishing the blog and relaxing watching Mythbusters – got to seize the novelty of Sky TV while I can.  Hope all have had or are having as a wonderful day/arvo/evening as I am.  Told ya I’m in a better place in my head.

Kia Kaha.

Posted in Ramble. 9 Comments »


9 Responses to “Monday 9 July Ramble”

  1. rangis.c  Rochelle Connell Says:

    Hey tony after speaking to u, i can understand why they let u play soccer eg up 5… lol..It is good to have Sue and Tony time when u only have yourselves to talk too.We found that last week….ily both xxx

  2. markandkyliereid  Kylie Reid Says:

    So pleased to hear that you had a fan bloody tastic day yesterday! I laughed when I read about Sue’s run in with a queue jumper……….totally understood her frustration. When I was dads driver, when he was having his treatment, we saw many instances of queue jumping, one person even drove round the car park the wrong way to beat another car…….unbelievable!!!
    Bet the boys will be totally into the camp by now and having a blast!
    Hope you have another really good day today!!!

  3. tomlins  Shona Tomlins Says:

    Hi tony
    Just heading home from Dunedin have had 10 days in Auckland watching girls playing waterpolo. Had three days of no kids at start, felt very weird but did get used to it, so enjoy your week together. Troys been farmed out around the neighbours,having a great time, will be good to see him tomorrow, then its back to work At least we miss the frosty mornings last week, roll on summer. Molly doesnt get back to wednesday, she got her full licence two weeks ago. Take care and have a great day tomorrow enjoy the sun shine.

    • southez  Headless Says:

      Hi Shona,

      I think I would prefer the Southland frost anyday to the Auckland rain ;-) Hope the tournament went well for the girls. 1 night withput the lads here is already to much. Strange been able to have a converstaion without the opinion of a 12 year old added in. Bet Troy is enjoying the transent life. Good break for all. Well done Molly – did she get a car as well? Week schedule is already fairly full anyway – dinner out with people on Tues/Thrus, at pub on Wed with footy boys (might go for a stumble round – daren’t say run after the example on Sat on the footy field) then boys back Fri (and I’ve started back on Chemo that morning).

      Take care and Hi to all.

      • tomlins5  Shona tomlins Says:

        No car yet, she spent all her money in Auckland so back to work for her, any way if shes got mine means I get to stay at home which is fine with me. Heard the Auckland rain but didnt get caught in it. Take care

  4. southez  Sue Says:

    Great to have your smiling company again. Your mood was a good fit with the weather last week – grey and raining. The sunshine has been out since Saturday, nice that you have joined the sunshine! x

    • southez  Headless Says:

      It would have been more fitting to have thunder and lightening last week. I wouldn’t rate sunshine as this weeks mood either yet – yes better frame of mind though, but feeling more ‘normal’ too.

      • kinkykiwikangaroo  Joh Edmonds Says:

        Love it Sue xx
        Bloody hell Ant, big dosage this time. Your body is going to wonder what struck it xx

        • southez  Headless Says:

          Hi Joh,

          Big dose for big tumors – but in the right head space now to do this. If I get the other crappy ‘in case’ pills out of my system then I will be able to take this on even better – so it will be the tumors will wonder what the hell hit them more over.

          Take care. Love you Sis x