3 Too Many

Day 3 of 28 Treatment Free!!

 Restless night again with cramp this time been the star performer in wanting to keep me awake – calves, soles of feet, hands, all sore at different times.  Get up at 6am & head into the gym to stretch out the muscles a bit and try to start loosing some of these extra kilos that I have found.  Manage 40mins in there before wearing out – still a fairly good effort.  Have a bit of a moment getting dressed as the radio plays a song that I have chosen to have played at my funeral – and don’t ask, cause I’m not telling what it is.  Oh and don’t get horrified that I mentioned the f word – not the 4 letter one either.

On with the rest of the day.  Jono is taking me to work today so no big rush.  Dad turns up to take Jacob to school, and Lachlan & Sue head off their way.  Fairly quiet sort of day watching servers again and trying to find missing pages from the archive.  Health wise is not good – thinking I have picked up a lurgy again.  Start to feel lousy and tired.  More so as the day wears on.  Start to get aches all over  – and the cramps are coming back again, in my hand this time.  I hate cramp more than anything.  Will make an electrolyte drink when I get home to see if that’ll help.  Head off at 2:30 as fading very fast.

Get home and do some research on the connection between the steroid and Cushing’s Syndrome.  Interesting as it seems there may be a link between some of the things that I have been experiencing and high/prolonged use of the type of steroid I’m on.  I will bring this up with then doctor next week when I have a meeting with them and see what they have to say about it.  Get a call from the Neurologist in Dunedin that runs the Botox trial and they are going to miss this course (the tumours are not related to the migraines I get). He will review this before the next session in relation with the Chemo Doctor.

Have dinner and start to feel a bit better than earlier.  So get on with the blog while I can.  Slow going as just can’t focus as have a fuzzy head   But it has to be done to satisfy you my faithful readers   Actually I need to do it to as it helps me, and one day in the distant future the boys will hopefully read it and understand what it’s been like for me and others.

Anyhow, slow going so will sign off now as things to do before heading to bed for an earlish night.  Keep happy & safe all.

Kia Kaha.