3 Too Many

Sorry learning to drive this Blog thing still _ if you want to read from the beginning then click the 3 too many link at the top of this page. I know sad an IT bod is trying to figure it out.

Sorry folks missed Thursday’s update,as was busy, tired & emotions were a bit raw so probably best not to spill all out on here – if you understand my meaning.  While we’re coping well it doesn’t mean I understand why for random reasons I wake in tears – not sure if it cause you’re I’m in pain or my mind is in what I call dark places. A comment I passed about all this is that it is much akin to childbirth – there is no instruction manual on how to handle it so learning the ropes as we go.

Had a friend Sarah from Invers stop by to say Hello Thurs arvo. Which was nice

Friday 13 April – Chemo Appointment day Also useless trivia for the day  did you know there is 3 Friday 13th’s this year & the spooky bit is they’re all exactly 13 weeks apart.

Sorry for the late update about how the appointment went this morning – head has been giving me hell today.  Had a big Nana nap this arvo too.

Met with the Chemotherapy Doctor to go over the plan of treatment for me  and this is the plan of attack pending agreement by the Radiation Doctor on Wednesday morning.

I will be getting 30 doses of Radiation – once a day for five days over 6 weeks (weekends off) while also getting the chemotherapy drug temozolomide (this drug is available now thanks to a guy Dave whom had a Tumor as well – different type& fought Pharmac to get it funded – unfortunately he passed over and never received it himself then read his story here http://www.headstart.org.nz/Site/Daves_Story.aspx) I will be getting a 1 month break to stabilise before starting on a 6 month course of the same Chemo drug again.

This is a very aggressive treatment plan but they have said it needs to be. The encouraging thing is that it goes for 9 months nearly.

I am back on steroids again to try to ease the random left hand & its mate the random leg which is starting to give way on me.I say Random as they don’t quite do what they are meant too even when I know my brain is telling them to do it.  They have mentioned that I might need a walking stick if the leg takes a while to come back to normal.

I will have another MRI probably in the next week and a start date hopefully for the following week fingers crossed.

Heading to footy tomorrow to watch the lads deal to the Western -ahh gents (moderated tone in case sensitive ears are reading it. Oh & to win the meat raffles at the club

Have a great weekend.  Go the Hawks & Thistle (for the lads in Invers reading this)& Crusaders