Friday 27 April Ramble
April 27, 2012 — HeadlessHey hey it’s Friday – thank bloody goodness!!! It has been a very long emotionally, physical week.
Must have been absolutely stuffed from Thursday as only drugs last night were the anti seizure ones – which I have to take regardless, I slept until about 6am – Yay – new record sleep in as such – as I slept all the way through the night. Thought about the gym, then though of self-preservation for dSaturday (see below). May as well start the day – iron Jacob a shirt & short for school (bout time he did it himself slack bum)! Then install more RAM in hom laptop, an give it quick flick over of drivers, an a couple of tweaks – all good running heaps better.
Need a cuppa tea, & a haircut (yep no hair still needs to be trimmed – well before I become a completely hairless headless). Why does time seem to slow down on me yep I am moving quickly still (or have I just really slowed so much that I don’t realise it?). My driver is here & running late again.
Off to PortaCare at Logistics – still it is Friday, so brekky at Cafe Raeward as usual – scrambled eggs, extra, extra bacon today – its raining need comfort food – honest & green tea. Plus a backup food supply of 2 cheese scones for lunch – I know – I’m just piggy at the moment – sorry!
Slow start to the day – lots going on with the Southland site printing – which I’m trying to keep up with as my old turf – hell – way to blow my mind guys – I can’t cope with all the emails as I’m still trying to process things. Bugger – these tumors have stripped some of my memory If I’ve got Wilson back then I’ve now got another challenge – to not loose my bloody memory. Doesn’t sound like a big thing – wrong it’s huge! I have always happily filed useless crap away and recall many things. Have a moment to dwell on it. Need to work on this though as can’t have memories lost.
Off for another quick trip to the CBD – then back to work as Dad picking me up to pass to the next career in the chain (I am to be under 24 supervision at all times – in case you wonder why all the mention of people of being with all the time – and I mention of celebrating getting time alone). Jane – sister-in-law & John her partner are here from Auckland and collect me from Dad’s and Jacob from school then home to meet Sue and Lachlan then we are off to visit Nana one last time and say our personal good byes. We meet Jenny & her son Adam at the Funeral home (still don’t know why they call it a funeral home – you’re not there to stay or sleep).
Nana is beautiful, and at peace. The undertakers have done a great job. A bit of black humour is shared about the place, etc. Got to have a laugh about somethings else you’d rock in a corner! One last kiss & goodbye till? Yep – it hit me – mortal moment! Jacob hugs me & says it’s OK Dad – He & Lachie are is so in tune with me at the moment – it makes me realise how real it is for them too. Family hug time.
Off to West Melton – Pam & Karl’s for dinner and a catch up with Nevil, Rose , Pam, Karl, – they all look as drained emotionally as I feel – and I am outside this. Helen (Zoe’s daughter & Stephen (her partner) arrive too – great to have a catch up with all and dinner.
Head home then as don’t want too late a night – Lachie has a footy game before the funeral, and – da, dah, dah – I am playing my last competitive game of footy tomorrow afternoon – yes last ever! Honest – actually reality it has dawned on me about this situation and I may be able to one day keep practicing the odd Wed but no more getting my head in the way of chicken winged attackers or any other object that does harm to the head in forced blunt contact. I am also playing as the guys in the Halswell Pinkies team are all shaving their heads in support of me tomorrow – so a humbling moment.
Decide to be a rebel and take the car 600 metres up the road to get fuel – to save stress in the morning before the funeral. Cleverly decide to put the car the the car wash at the same time – well I thought was clever until the wash cycle finished so I thought I’ll flick out the wing mirrors while the wash unit goes back to start the drier phase – doh! The bloody polish starts spraying! Ah – very wet inside the car all over me – bugger bugger! You muppet! (common fault here – I thought!) So clean car in and out – really. Come home to display shiny car, clothes, head and car interior! And to find that Nana’s Belgium Biscuit recipe has been broken out for one memorial batch to be baked by Sue and Jane.
Time to blog, practice memories reading for funeral tomorrow – and get footy gear out. I might need more time yet – M&D time coming I think – well do I go with the pain killers – head is hurting as i have dropped 1 steroid a day and banged my head 3 times today already – or do I wait and see if I sleep or wake in pain than pain-killer it. Hell I remember I used to have a Milo then bed! Not decide if my drug mix was going to produce a hyper sleep or a deep one – oh somber normality whence will you return from you’re retirement?
M&D time folks – till the morrow. Take care – have a fantastic day.
Kia Kaha
April 29, 2012 at 9:08 am
Oh, I meant to say also; I wholeheartedly agree with your comments.
I DEFINE MY CANCER! MY CANCER DOESN’T DEFINE ME!
Always worth keeping in mind
May 1, 2012 at 10:51 pm
Now this is the line I love and I think signifies exactly how I am appoaching this.
I DEFINE MY CANCER! MY CANCER DOESN’T DEFINE ME!
April 29, 2012 at 3:48 am
I’m loving your blogs Tony. I was even getting worried when I hadn’t seen one for a few days. It’s probably not your fault that I have started to cry (well, sniffle a bit around the edges) when I read each one. What is this cancer thing – a bloody anti-macho conspiracy! Sounds like you had a demanding week physically and emotionally. Sounds also that those around rose up and surrounded you to try and take the force out of the blows (to paraphrase from a Massive Attack song called Protection). The unexpected kindnesses can catch you unawares when you’re focusing on the battle huh. ANZAC week in more ways than one. Thinking of you (in a very butch, macho, kick you in the nuts as a joke, kinda way!!!). David PS. Please be aware that I respect your privacy and will not mention anything else from your blog on my Facebook page without your express permission. My own impressions of your writings and those of other cancer battlers I reserve the right to record as we all deserve the right to be heard.
May 1, 2012 at 10:48 pm
Hi David, glasd you like the blogs -Sue keeps me very much up to date with all your going ons, and we must email call sometime soon as there is to much to be shared that need not go out to the public arena. No worries about the blog on FB – I just decided that I wanted to keeep a bit more control on my witing than the Mark ZUcherburg way – both work just the delivery is diffferent. I love your writing on your page too – awesome work. And the pics you have are fantastic – love the one of the rottening old wharf piers at Bluff. I find it is very theraputic. Last week was one of the most taxing we’ve faced in a while – some days you have a down pour some days they drop the moonsoon bucket on you! Or the line I like most is some days you’re the bug, some days you’re the windscreen!
We will fight this burden every step of the way as long as we can for as long as I can move I am alive!
We will catch up soon.
Keep the battle going David- I’m behind you too.
Kia Kaha.
April 28, 2012 at 6:33 pm
Hi Tony sorry about your head, sounds sore. how’s everything going in Christchurch? Meg riped the head of her toy dog,& on another she ripped the nose off! she allso split out the belly open LOL!. Barking at her bed all the time, pretty close to being toilet trained YAY! really good to catch up with Lachlan good luck Tony from JackT
May 1, 2012 at 10:32 pm
Hey Jack – hope all’s going well for you. My heads not to bad buddy actually – guess I might have a little more room than others do after all Oh dear, naughty Meg, that’s not very nice of her is it. YOu need to becareful she doesn’t swallow the beads or noses though as they are not good for her. Good luck with the toilet training – it will be lots easier when she’s learnt that.
Glad ou and lachie had a good catch up – he said he had a fun time seeing everyone- and came home all relly excited and talking about seeing you all.
Cheers, Tony