Monday 23 April Ramble
April 23, 2012 — HeadlessRestless night – fidget night – oh for a full nights sleep! At least it is body restless not mind this time. Only one cure – gym at 6am that’ll fix it all – and does until the 6:45am fitting of bike lights to Jacobs bike gets in the way!! Ahh – why is it the simple stuff now takes 40 mins to achieve! only had to clip the damn things on – seriously. But when Wilson decides to assist it turns very difficult for all. Job done – all working.
Off to work to Logistics then & another trip to the new building in the Red Zone coming up.
Time or a little moment about the quakes here – today I got to look out from the third floor of the new Press building just before midday to see them start demolishing the remainder of the spire of the Cathedral. Bit of a poinyant moment of reflection for me really as on Tuesday 22 Feb @ 12:51 I stood in The old Press building about 30 metres from where I am now and watched mother nature knock the spire down on this same Icon of Canterbury and here I am now 14 months on (though 1 day & 1 hour earlier) watching Man power trying to finish Mother Natures handy work (it took her about 25 seconds). Maybe it is just me been a soppy git of sorts – but whats the chances of witnessing 2 events like this unplanned considering most Cantabs haven’t got to see in this part of their city? I know there are arguments about the Cathedral but watching what was happening with the spire today every time it was touched by the demo claw all 3 walls twisted & moved – it is not stable – it needs to be lowered we are dealing with Mother Nature who doesn’t care how many foundations you have, how many cornerstones make your church, hall or city – there is a time to accept that we are against a bigger force than man & machine and get it right from what we think we know about this force now – though Feb 22 proved we are still very much infants when coming to knowing how our billion year old mother can behave. Maybe this is just one of these things that I guess I was meant to witness seen as I’ll not get to see what the new city will become. Right enough deep cr@p!
Off to Chemo Nurse Education session though I’ve no desire to become a Chemo nurse so don’t know why they want to educate me What a stuff up! Checked in at reception – upstairs – waited half an hour – Sue went & asked when we’d be seen – oh the session is downstairs – haven’t you been? Well obviously already to much of a frequent flier to Oncology if they didn’t think it odd just us sitting there twiddling thumbs for 30 mins. Taken downstairs then and told that would be seen soon. 20 minutes later – finally an Oncology nurse called Candy (and not that sort of Candy nurse either!) – comes and finds me – to then explain that they have no record of me – how rude!! They don’t they know who I am – Nursey you’re not making friends here And then she suckers me with the old beauty line – that they are changing between computer programs and that my files are imported over yet – good old blame the computer system one – not sure if I’ll warm to Nurse Candy at all . Session once started went very well have a strict drug taking routine I’ll have to stick to, and weekly blood tests – ouch yuck! Guess I’m going to get this blame the PC nurse a bit over the next 7-8 months as I’ll be in nearly everyday of it (except when in the month gap) and Nurse Candy will be there with me all the way. I forgave allowed the slip in her judgement (don’t blame computer when dealing with IT folk) eventually – at least I think I will in about 2 weeks time when it all starts. Got given my Green card – unfortunately not my US one but my flash Harry Cancer one – so it makes me an official Oncology patient I really pray to God that I don’t know or hear of any other folk that will get one of these things or have to face this ordeal in any form. My green card is my emergency 24 contact to Oncology and if I have to go to hospital via A&E it is a go to the front of the queue ticket anywhere in NZ.
Basically that’s the day folks – a bit of dribble, a bit of me been a soppy git about the Cathedral & the dealings with Nurse Candy. Having an earlier night tonight as planning a full day at work tomorrow – depending how body & brain are going. BTW – Wilson is behaving more – though taking a huge amount of work which is tiring as retraining the brain., but I am not going to give up – sense of taste still sucks huge time – oh well small trade – bit of luck I’m not allowed to drink anymore – as would be a shame to be drinking my mates Grey Goose or Jim Black & not taste them!
Hope all have a pleasant day/night too. M&D time!!
Kia Kaha
April 24, 2012 at 6:14 pm
Missing you Tony but checking in each day. Candy – not a usual nurse name eh! Take care.
April 24, 2012 at 8:42 pm
Missing you too Ann – We had Martijn working with us again today – the PortaCot was getting full today. Just need David & Shaz now. YoU missed lunch too- sorry Hope the training is going well and they are listening to you!
Candy is South African – but it still grates me that she blamed the computere system.
Travel safe – take care.
April 24, 2012 at 5:04 pm
Well, who would of thought that Tony Edmonds was a soppy git….not I Hey Tony, I have finally had a chance to read your whole journey so far, and what a lot you have had to deal with already. You write so well, I know I sound surprised and probably shouldn’t be…. you have always been able to out talk anyone, but let me say THANK YOU, thank you for sharing and giving us a glimpse.
Our thought and prayers are with you, and mayby a fish & chip tea again sometime ? FIght hard, fight long and leave a legacy!
All our love
The Bisley Fam
April 24, 2012 at 8:36 pm
OK- wak moment – don’t tell everyone! Doh – that’s right I did – OK I’m soppy I t is very much a collective effort from everyone- Family, friends, work, hospitals, doctors – I ignorantly never knew just how many special people come through your lives in such a short time, all to work just for you – it becomes very humbling when you don’t like a big fuss been made over you. As for the story – you are more than welcome – if anyone can learn anything that will help others from this then I feel that I have acheived something, as we have found out there i sno Cancer for Dummies book out there so i is also what we have learned along the way.
Yep F & C tea definitely – seen as i can eat what I want really and it will be fgreat to catch up too.
Definitely going to fight it all the way to the end.
Take care all.
April 24, 2012 at 2:46 pm
Hi tony.
Hope the basket was filled with all you favourity treats. Sorry just worked out that Im suppose to check this each day, sounds like a hecky few weeks you had between hospita,l doctors and visitors, Great to read whats happening and so pleases Sue has such a strong guy to keep her in lin. Still have my fingers and toes crossed for you which explains why I have such a pain in my toe. Hope yourve had a better day today, will keep reading. love and hugs
April 24, 2012 at 8:22 pm
Hi Shona – it was filled perfectly for me – Espcially as the Oncology nurse yesterday that I can eat anything I want even if it is not technically good for me – I will work my way through the whole package – now theres a goal! It has been a very busy past month altogether – but nearly to the business end of it and the real battle ahead thru the treatment! I well am truely ready to go head on with all this now. So uncrosss the toes – don’t need others with issues! Enjoy the reads – the content really depends on what spills out – as it is totally uncut me (well toned for a public arena – maybe). And who is keeping whom in line? I just follow orders from anyone now as I can’t drive drink – have touble thinking straight some days and need 24 hour supervision! Hugs & Hi’s to all.