Tuesday 5 March Ramble
March 5, 2013 — Headless“Motivation is what gets you started. Habit is what keeps you going.”- Jim Rohn
Bloody sleep again stuffed up. Feeling very tired and out of sorts, which I said yesterday seems to be part of my new normal. I need to muster all the strength I can today tired our not as i have the big scan starting at 10am had a strange dream at about 4 am when I dosed of at the table. The biggest thing that pees me of with Wilson is the jamming of fingers, in doors, drawers, etc. And as I can’t feel that it is hurting, only usually notice the fact that it’s stuck when I go to move my arm and can’t. There is no pain when I jam the limbs and attachments as I can’t feel anything through them anyway. Getting sick of burning myself and going to walk off from a cupboard or something only to find that my hand is jammed in the door, which stops you in your tracks quickly! Have to laugh really as go to innocently walk of then it’s like I get yanked back as my hand is wedged in a door by the fingers.
Wake up about 6:15am then get the boys up. Down and make a cuppa tea and breakfast. And take my meds. Sue takes the boys to school while I get ready for the day. I’ve got a big MRI scan to be done on my neck and head today at 10am so are staying home today. When I say big they have said that the scan will go for about 2 hours compared with the MRI usual 30-45 mins it takes. Get dropped off for the scan, they tell us it’ll be about an hour or so, when I go through they then tell me about 2-3 hours. Whatever the time it takes I just hope that they get the answers they need from these scans, though it takes a while for them to read and analyse them, not in a hurry anyway as I’m living with it each day and pickup what’s changing so don’t really need to have pictures to tell me. Normally don’t have issues with MRI scans but as this is about to start they tell me I’m in for about 2½ hours scanning time in total. It fair takes it out of you an you get heated up inside the machine, so come out sweating and feeling absolutely exhausted. Even the scan staff were complimentary of the fact that I had managed to make it through 3 hours of scanning! Head home and rest up as per the instructions of the scan staff, doze off then for about 3 hours as shattered. Managed to hold off 2 spasms today, I am starting to be able to recognise when one is about to come on so can head them off with the magic spray. Sarah,Richard and Jayden come over for tea and a catch up. Have a great evening, and shared loads of laughs. Nice to have family evenings like this. Get the blog done, watch some tv, do some brain training of Wilson in an attempt to make him useful again. Feel a spasm coming on so get Lachlan down to have a turn at giving me spray in case he is the only one with me if i need help urgently. He handles it well and understand why and best of all asks questions which are really good. Blog done. Time to post blog then M&D time and bed. Hope all have had a fantastic day and less torturous than mine. Back to the office tomorrow, so normality of sorts. Take care all till tomorrow. Also to all those that have left messages or called, we’ll be in touch soon, just been really busy here and tired.
Kia Kaha.
March 6, 2013 at 10:51 am
We hope the MRI scan provides some answers at least so you have some more understanding, even though you are already dealing with the condition anyway.
Tony – your stoicism and sense of humour is inspirational, while your whole family’s resilience is simply humbling. What a team
Love & hugs from Jafa-land,
Doug & Pip
March 6, 2013 at 5:14 am
Hi Tony. firstly thanx loads for the WiFi stuff – you know how untechnological I am so all the more grateful. Trust your MRI scan tells you things that will help you – and what is good is that your sense of humour comes thru and your family is such a wonderful unit. It was great to have you all here Monday night.