Monday 1 October Ramble
October 1, 2012 — Headless“The only way to keep your health is to eat what you don’t want, drink what you don’t like, and do what you’d rather not.” – Mark Twain
Wow – October already! Bloody time is flying by – please slow down for a bit! Another day, more pain 
I swear that every joint in my body is now aching! Deep aching pain too, that doesn’t go away, even with the good pain killers. If I was a horse I’d be glue and paint brushes by now. Get up and head for the meds. Then get myself ready to face the day. Working from home today as the boys are on holiday.
The lads eventually drag themselves out of bed about 10am – slack bums! We head off to the chemist to get more pain killers as I realised this morning that I had run out. Walk to the chemist and back – another 5kms clocked. If you’re wondering why if I’m hurting so much do I do walking, etc. it is because I’m a sucker for punishment and also I find it helps if I keep moving. It’s like the joints need to warm up first and they don’t ache as much then for a while. I do have moments though where I have to stop because of the pain, but then push on again. It seems cruel that my car driving is taken off me so I’m reduce to walking, and then that starts to crap out too – what really did I do wrong to be dealt this?
Woke several times again last night with the pain, and have done some research into it as I have been wondering if it was related to the steroids that I was on until last week. Or was it something else. It seems that it is actually a side effect of the Chemo drug – Temozolomide – that I am on. The sad/bad news is that it could get worse with each treatment I have. I guess I have something to look forward too in a weeks time when I start my next round of Chemo next Monday night. And I will still have another 5 to do after that – by Feb I probably won’t be able to move! Oh well, I should complain as this drug is fairly new and very expensive and it seems to be doing it’s job for now, so I can only really count my blessings that I can take it, side effects and all, I’m here still for you all. Prior to this drug I would’ve been well on the road to having the full time buzz sounding.
The other thing I found out was about Chemo Brain – the effect that Chemo has on your mind in creating the foggy feeling I get sometimes. So it may not be the tumours doing their things at all – but the drugs. Apparently they can cause memory issues, mental issues, and a feeling of everything been cloudy. Which is how I feel some days. Also meant to say Wilson had a moment yesterday, well twice actually. The first time he dropped a bottle which smashed, and the second time he dropped a plastic bottle. Bloody random hand and arm!! He will be suitably punished in due course!
Get home and get back to work. Steady day – servers have an issue while I was out – (nothing to do with me), so I missed all the drama. Boys have a great day not annoying me and entertaining themselves without arguing or fighting. Jacob does the housework – he is a good lad, while Sue and Lachie go to visit Roh and the girls. Jacob and I head down the Domain for a kick around for a bit, then come home and get dinner ready. Sue and Lachie are already there and have tea started. Roh, Andy and Janelle come over for a visit for a bit.
Do the blog, and think about having a bath to soothe the aches, as really hurting again now. Have M&D time and crawl into bed to read for a bit. Have a good evening/arvo/day all.
Kia Kaha.