3 Too Many

“Being deeply loved by someone gives you strength, while loving someone deeply gives you courage.” – Lao Tzu

Well the steroids have done their usual thing – very restless sleep with the brain buzzing at 10 to the dozen.  Mange to get to sleep about 12:30 but wake at 12:50 thinking that I’ve been asleep for a few hours – wrong!  Struggle to go back to sleep again.  Getting up about 8 feeling 1000 times better than yesterday.  Just in the usual strange places in my head. Not grumpy, just p’eed off with things.  Don’t get me started though.  Get ready and round-up the boys as we are going to the Adrenalin Forrest at Spencer Park for Jacob’s birthday. 

Borrow the Booth’s car – thanks muchly Wendy & Greg.  Go and collect the appropriate children and head off.  Adrenalin Forrest is a challenge/confidence course of 6 levels through the trees, where you climb high wires and go down flying foxes up to 17 metres in the air. All the boys do to level 4 but Jacob wants to keep going and does level 5.  Each level gets harder and higher, but he did a fantastic job and completed it with no issues.  We will go back some time when I’m more up to it and all do it again as Jacob wants to do level 6 next.  They are also putting in another level – Jacob’s eyes lit up when he heard that.  Eventually leave about 3 and a half hours later.  See the pics at the bottom of the blog.

Home for lunch – American Hotdogs and potato chips, lollies and drink.  Joh calls for a catch up – have a good natter – thanks Joh.  Don’t have any lunch as have a terrible metal taste in my mouth, like I’ve been sucking on nails.  Kids suitably full of food.  Sue is taking them to the skate park next so they can ‘hang at Wash’ (Wash is short for Washington Way skate park). Lachie and I stay at home by the fire.  He has a sore ankle and I am hurting a lot so best place for us.

Sue and the boys – minus those getting dropped home, the arrive home.  I make a start on the blog for today seen as I’ve only really given brief ones lately.

Going back to the sleeplessness and as we know the stuff that flies around in my head, I though it might be fun to share some of it.  Also I never finished with the empathising have been given a terminal illness life expectancy.  Anyone done what I said too?  How did you go with it?  Has it prompted and difference in how you see the world?  Has it got you thinking about what your priorities are?  Would you write a bucket list or things to sort out list?  Or both?  These are things that you need to consider.  What sort of treatment options will you be given – and how will you face them?  While you can do them, there sometimes has to be a time when you have to call time on them as the benefit from them compared to the hell you are being dealt just out weighs the other. Can you take a knock down pick a type of life – what I mean is that no 2 days are the same and while you are full of energy one day you may be digging deep to even get up the next.  Your mental state can change in seconds too – by that I mean you can go from angry to happy to depressed, to elated.  This is very common in terminal patients and not just those with brain tumours.  It is because so many things are happening that you sometimes can’t cope with all the emotions and what they bring.  Somedays too you just want to stay away from the world, others you just need a hug or a kind or a positive word to get through the day.  Right well that’s enough of that waffle for today.

Quiet evening really watch tv and the rugby. Then M&D time and bed, to see if I can get some sleep.  The youngsters next door are having a 21st so I don’t think that even if I do go to sleep it won’t be restful!  Fingers crossed I do.  Still if I don’t then that is just the way it is.  Hope have had an enjoyable and relaxing Saturday.

Kia Kaha.

Jacob determined to make it!!!