3 Too Many

Day 12 of 28 Treatment Free.

Another early one to start the day. Woke in pain about 5am, & managed to go back to sleep, then woke with cramp about 15 mins later, then pain then the random tears are back – WTF!! Decide to get up then to take the usual helpers.  Start on the blog to get a head start as I think it is going to be a long day.

Have been thinking about the waffle from yesterday and realise it probably didn’t quite come across as I wanted.  It was more like a grumble/grump than a waffle.  Yep I was a little pissing writing it  – as I do get at myself and others.  Please do understand though that it does get frustrating, and I do try to consider others feelings and how they are coping with whats happening me.  Some days are harder to really do than others.  SO if you took it wrong, or I did get it wrong, then so be it.

Seem to be lost in time again and feel I’m rushing lots, but probably not really are – just the illusion you have with these bloody drugs.  I really would love to take a month off all together, just to find out what they are doing to me.  The anit-seizure drugs seem to actually make me worse and bring on tremors  – how ironic.  The steroids – well we know what there – but I am now on a half max dose (8mg) so getting down.  The anti-pnuemonic one is fine and the pain killers – what shall we brew up there, as I have 3 different drugs I can combo up depending on the pain levels – 9 out of 10 times it is only a Panadol or 2.

On with the day and off to work.  Another quietly steady day.  Bernard, Jono & I go to The Boatshed Cafe for brekky.  Not too bad really – still not quite up to Cafe Raeward really.  Get back and keep working on. Really not in the frame of mind to do much but have a little job that I need to remember so don’t mind the challenge as it gets the brain working on the remembering.  Leave at 1:15 today, just  as I’m depleting for the day.  Seems that while I’m  still crashing out, it is now later in the day and Thursday/ Fridays are more manageable, where they used to be bad days.  Login to work when home, but the system has a few issues and doesn’t want me to stay connected properly – well consistently, which frustrates me as I was on a roll.  Oh well – manage a bit more work then call it quits.

Andy, Roh and the girls come over to visit and have a catch up.  We decide to do F&C’s for tea and watch the rugby. Pain in back is doing its thing but decide to wait before taking pain killers so that I can have some before bed and get some sleep – well hope to get some sleep.  I do not want a repeat Saturday of last week – thanks! 

Do M&D time and finish blog while waiting for them to kick in.  So good night/day/ arvo folks – take care – have an enjoyable weekend whether relaxing or partying – but be safe.

Kia Kaha.