3 Too Many

T Day = 37 (Adjuvant chemoradiation) – 4 Radiation & 7 Chemo to go this round.

 Crappy sleep – pain, restless, and a bloody loud rattly 4.2 quake rumble through at 2:30am.  Oh well – guess that the fun of living in quakesville! Still fascinated/impressed by the physics of the quakes. Sort drugs and start into regime quickly.  Stir fire into life as it is bloody freezing downstairs.  Make a cuppa tea and start on the blog for the day as I am finding it very draining / non logical trying to complete it at night.

On a positive note – I have been thinking about the talk yesterday with the Chemo Doctor/Registrar and how happy (actually you could say chuffed) he was with how I have made it through this first round battle of Adjuvant treatment.  He had my file with him that is slowly turning into a novel, but the latest entry in it was a report on my treatment both Radiation & Chemo, mental state, attitude, any side effects, blood levels charted over the 5 weeks so far – and as he said that it is nothing but encouraging reading from the perspective of what they are trying to achieve. Which is to buy some extra time balanced with been able to give me quality of life.  It is encouraging to hear that what they are doing is what’s been achieved.  We also spoke about the steroids and managing them through the second round – as they are the biggest impact on everything, in terms of side effects, that I am suffering from.  He has agreed that he will look at that closely but I will have to be on them.  Because of the rarity of the tumors, the medical team here are having to take direction from a team in America that have dealt with several similar cases and are  working based on the results from the treatment they have dealt out.  There is some fine tuning needed for each patient.  But the biggest thing that he was impressed with was the attitude to it all, which he said was the most encouraging part.  And that to have the right attitude going into anything like this is a great part of the solution.  I said that it was because of all the positive and supportive people I have  – so all of you out there in Blogland take a bow   Thank you for your support, positive thoughts, kind words, and just keeping me inline when I start tracking off on the bad days.  Right enough of the teary moment – just take the praise and move on folks

Nearly time to roust the boys and get on with the day – well intend too but Jacob appears at 6:50 already dressed and ready for the day. WIll head to work this morning then Nevil will pick me up for my zapping at 12:20 then grab some lunch before the 1:30 Radiation Doc appointment.  Mask fits good today so Radiation is a breeze & they don’t do a CT scan again as they put new alignment marks on the mask yesterday so it makes it even quicker. See the Radiation Doc and get the X-ray results back – they are not sure what is causing the pain but will continue to monitor it.  Doc is very happy otherwise and gives the thumbs up to how I’m going – its great 2 docs happy with all the treatment so far in 2 days. The good news is that from Monday I will decrease my steroid intake to half a tablet with the plan to come off them n about 2 weeks – yay!! Then come home and login to work.

Nevil picks up the boys and brings them home so they can get ready for footy practice – won’t be helping today as far to cold & I’m starting to fade energy wise big time.  My hearing seems to have taken a bit of a hit with todays Radiation too – as I have loud ringing in my ears and the left ear is like it has cotton wool in it too – bugger.  But these side effects should fade in about 3-4 weeks after the Radiation finishes. Do the shuttle runs to the footy grounds with the boys.  Struggle to stay awake during the trips.  Then home for tea.

Quiet evening – blog done, head hurting, nausea still going – has been most of the day  – so force myself to eat when I can   Intending to have an early night as very tired and need to get energy levels back up again.  Just as soon as MasterChef finishes. So M&D time at 10 then bed.

Keep it safe & happy out there folks   We’re nearly at the end of round 1 of this bloody battle!

Kia Kaha.