T Day = 15 (Adjuvant chemoradiation) – 19 Radiation & 27 Chemo to go this round. Woken with a real fog on today after a restless night. Pain ok, but its woken me – again. Another bloody groundhog day Just feel flat. Maybe it’s just that I know radiation is coming today and that will drain me […]
T Day = 14 (Chemo only in weekends) 28 Chemo to go this round. Another little sleep night bugger it all really – kept waking with different things – but mainly pain It’s OK – not overwhelming or the likes – just dull throbbing headache and back. FInally give in and get up at 4:45 […]
T Day = 13 (Chemo only in weekends) 29 Chemo to go this round. First up apologies for the slow update of Saturday – busy day and tiredness stopped anything of any sense been produced. I only managed about 2-3 hours sleep on Friday night as between pain & general restlessness I could not settle down. Up by […]
T Day = 12 (Adjuvant chemoradiation) – 20 Radiation & 30 Chemo to go this round. Well not the best of sleeps one could say. The steroids reduction is meaning that the pain in the head (the steroids help with the swelling of the brain from the tumors, radiation & chemo to ease pain), is back – though […]
T Day = 11 (Adjuvant chemoradiation) – 21 Radiation & 31 Chemo to go this round. Another fantastic sleep and waking refreshed – long may this continue! Not sure what it is – the resting during the day, or the knowing that I’ve got to rest to get the maximum benefit from the treatment or […]
T Day = 10 (Adjuvant chemoradiation) – 22 Radiation & 32 Chemo to go this round. Sleep – glorious sleep!! yes with a big fist pump!!! Woke once but went straight back to sleep. 6.5 – 7 hours straight and feel so bloody awesome for it!!! Still up at 5:30am but I’ve slept and feel rested […]
T Day = 9 (Adjuvant chemoradiation) – 23 Radiation & 33 Chemo to go this round. Well – early to bed early to rise I guess in a way that is very true. Broken sleep – with pain since about 1:30 – pain killers not really doing their thing bugger it. Then the brain starts amping […]
T Day = 8 (Adjuvant chemoradiation) – 24 Radiation & 34 Chemo to go this round. Well the early night last night worked a treat – a great nights sleep until about 4-4:30 when the pain starts kicking in again. It is not just head pain – it is an all over pain – back […]
T Day = 7 (Chemo only) Happy Mothers Day! Well – actually not yet – sorry folks absolutely beyond energy or brain levels to be able to do anything so heading to bed to try to rest. FIngers crossed I will wake feeling revived and ready for the week ahead. Was I really that tired? – […]
T Day = 6 (Chemo only) What an awesome way to start the day – nearly 6.5 hours sleep through the night – no foggy feeling, and OMG – almost a normal level of pain. In fact it is only the back aching around the kidneys and a headache that caused me to get up at […]