Saturday 26 May Ramble
May 26, 2012 — HeadlessT Day = 20 (Chemo only in weekends) 23 Chemo to go this round.
Slept well until about 5:30 when pain and alarm woke me. Head and joints hurting lots today 
come downstairs and get the meds ready for the day, take pain killers, and make a cuppa tea. The pain killers take a while to kick in – it is going to be one of those days. Also the blob on the left eye is very bad now, and that is causing issues. It makes it hard to actually see clearly, and is tiring – so going to get an eye patch this morning for it as walking around covering it is not ideal. It is an unfortunate side effect of the radiation treatment. But the good news is that it should disappear once radiation ends – yay!
Having a very tired day – fall asleep at the drop of a hat this morning – eye patch and all. Its going to be one of these days – bugger it. Usually Saturdays I have bounds of energy – today I can bearly stay awake. Lachlan is out of here early as he is playing against Waimak and they are about 40 minutes away. Unfortunately the trip out there didn’t prove to good – they go down 7-0! We head off to Jacob’s game then against St. Andrews – I fall sleep going there, then for about 30 minutes on the side of the pitch waiting for the game to start – seriously – when I say I could sleep anywhere – I mean anywhere!! I could be in a war zone & still catch Zz’s. Jacob’s match is one of 2 halves – they’re asleep in the first half and all seem to have lead in their boots. The second half is an improvement but the damage is already done as they are trailing 4-0 at half time and end up going down 6-2. It’s now down to the big boys this arvo to show the way! Well I hope they do -0 they manage a 4-4 draw – great going gents.
I intend to try to get down to see my teams game as it is just around the corner from home. But with how I’m going that could be a long shot! Well – getting to the game didn’t happen – sorry guys – to tired, and sore. Damn you shitty side effects! Mood seems to have swung to a grumpy – short fuse – just really frustrated feeling drained of energy, unable to think straight, can’t decide how I really am feeling – happy, sad, angry or just mad. Feel confused, and to top it off the nausea waves have already started and I’ve just had lunch – bugger it. I’m trying to have some crystalized ginger to settle it a bit as it has been suggested to me. Seems to be doing the trick for now. What to do next – get out the knives and the sharpener – what else do you do when in a mixed up mental state but get out knives to sharpen (insert evil laugh here) – hahaha!!! It’s ok folks I’m a trained professional – so don’t try this at home.
Aunty Zoe arrives for a visit and catch up – great catch up and some good follow-up stuff for me to look at – thanks Zoe, I’ll have a look for sure. Also – apologies to Vicky – thank you very much for the Fruit loaf you made – I must admit that I normally steer clear of fruit and veges but something with these things has made the taste of these ‘things’ really enhanced so I’m eating more than I did ever, and the fruit loaf is just awesome!
Nat visits for the evening for a catch up, and brings dinner – thanks Nat and a vino or 2! She renames the study to mission control! Excellent! Have a good but tiring night, so M&D time and sleep I think.
Have a good safe one folks where ever you are!
Kia Kaha.
May 29, 2012 at 11:47 am
Hey Pinky – missed you on Saturday – could have used your goal scoring nouse! Hope to see you at the next home game – 9 June vs Nomads. Take care mate.
May 30, 2012 at 6:53 am
Hey Guy,
I would love to have been there, but really I had little chance of actually walking to the side of the pitch let alone kicking a ball! I had a really rough day on Saturday. Good result though!
Intend to make it to the next game – just got to manage my energy better!
Take care.
May 30, 2012 at 1:02 pm
All good – got a pair of boots that are your exact size lol…… Don’t try this weekend – weather looks like it’s going to be a bit shitty so best to be on the Xbox!
May 31, 2012 at 6:42 am
Haha – nice one Guy!! Will just see how it goes – can’t even play on the gaming consoles now as the movement messes with the head to much ironically and Wilson gets random with the controller movements.
Good luck anyway lads – would be great to get a win over them!
Take care.
May 27, 2012 at 11:01 am
Hi Tony. The side effects sound just dreadful! You are doing well to be getting out and about like you are! I laughed at your description of Jacobs soccer team – asleep with lead in their boots – as Bevan more or less said the same thing about Jeremy’s rugby yesterday. Was a terrible game apparently. Frustrating to watch. Not sure rugby is the boys ideal game really, but at least they get out and get some exercise and team friendship etc! We are thinking of you all!!
May 30, 2012 at 6:47 am
Hi Toni & Bevan,
It is just one of those things where by the end of the week you get exhausted and probably I shouldn’t have gone to work on Friday, but it was moving day into the new building so there was a farewell out at the temp site we’d been at, etc, and didn’t want to miss out. Unfortunately I pid for it over the weekend – so now I know I’ve got to balance things a lot more and listen to my body. Also the decrae in the steroids is helping wiht things hugely too – sleep patterns are coming back to normalish, and eating less and better.
The footy was just aweful to watch – it was a cold day and they stood there shivering not really wanting to run to get warm -just waiting for things to happen. Very frustrating to watch! Jacob tried rugby too for a season down South but I think he is more suited to footy – though he still argues the point wiht us now about it – parents – what do we know!
Take care all.
May 27, 2012 at 9:03 am
Hello Tony, thanks again for your blogging, it really good to read how you are going with your treatments! You have the most amazing attitude, keep it up!!!
Was just checking the Mainland website to see who Josh is playing next week and it appears we will be seeing you guys next weekend! It’s Marks turn to watch Josh’s game but I’m thinking if Oliver’s game finishes on time, I may just make part of the 2nd half. Look forward to seeing you next weekend.
May 30, 2012 at 6:40 am
Hey there guys,
Excellent – you’re more organised than I am! I haven’t even looked at the tables for while. I will have to make sur ethat I get my moon face beauty sleep on Friday night so that I am not like last Saturday where I could bearly stay awake for more than 2 mins at a time. Will be fantastic to see you all and catch up. Glad the blog is still hitting the mark. As the treatment goes on it does get a bit harder – tiredness and can’t think some days – there is so much to want to blurt out – but Wilson starts adding to many extra words or letters or the eye blob is to bad that the screen is just a horrid blurr and tires you out. I’m getting adjusted to it so intend to improve the writing quality again.
Good luck with your games on Saturday lads.
Take Care all – have a great week and all going well see you Saturday