3 Too Many

T Day = 8 (Adjuvant chemoradiation) – 24 Radiation & 34 Chemo to go this round.

Well the early night last night worked a treat – a great nights sleep until about 4-4:30 when the pain starts kicking in again.  It is not just head pain – it is an all over pain – back – around the kidneys, joints, etc.  Eventually get up at 5:10 ish to take painkillers and make a Milo as I find that standing up actually helps hugely.  Guess this i snow going to become a bit of a new routine – and the time of day is not to bad as I have to start the drug routine at 6am anyway – would just be nice to sleep almost all night and wake at 5:30 to an alarm.  Oh well – put it down to learning and hope.  But at least I feel good, in a good head space, and thinking clearly.

Early radiation today – 8:40 – Sue driving so drop Lachlan at school on the way then to the hospital. I talk with the radiation team about the side effects (when you sit to wait for your treatment if you are getting adjuvant – combined – chemo/radiation treatment there is a checklist you must read everyday and point out/mention to the team if any of them apply to you).  And how I felt so good on Saturday and most of Sunday and said that it must be the radiation that wipes you out – buzz – wrong!!  They said that it was due to the Chemo and probably more good timing that I had a good weekend as the radiation tiredness will start to kick in – fan f’ntastic!!  I’m really looking forward to that – not!!  Also some of the other side effects will start to come through like hair loss – stop laughing!!  Anyhow radiation went well today apart from I have now got one side effect they warned of – and has become worse during the day a shadow/tinted blob in my left eye (this is cause of the right side brain controlling the left side body – and is a side effect that they hope will fade once the radiation is all finished fingers crossed).  Still bloody annoying looking at white backgrounds and seeing a blob there.

Into work then and on with the day.  I’ve been thinking about the energy crashes that I’ve been suffering so decide that it maybe just needing food on board to keep going and keep moving.  So I eat small amounts when I can – I say when I can as the other lovely side effects of the Chemo is now coming through – nausea – I keep getting waves of illness pass through – only small ones at the moment thankfully.  But as the doctor & nurse said, in between waves eat – don’t worry what it is  – just eat.  So doing that.  And guess what it works!  I get picked up about 1:30 and head home as while going well enough with energy I am fading of and need to nap.  So have food then hit the bed for an hour.

Boys home – so get lovely welcomes when I see them – they know to leave me alone if I’m asleep, which is great and really understanding.  Wake feeling quite refreshed too – which  feels good.  Apart from the blob in the eye still stalking me – ggrrr – this is going to pee me off – almost makes you feel off-balance.  Decide to run the mower quickly over the lawn before the weather finally turns.  Can’t believe mid May and 2 x 20 degree days in a row and the ground is like concrete and dusty.  OK – mowing lawns – as small as they are – might have been a bit brash – it takes its toll energy wise.  But at least Wilson is behaving so no desire to feed him to the mower this time   Wendy pays a visit and brings chocolate cake – yum (settle droids)!

Quite evening – dinner is Rohs very delicious Pumpkin soup and choccie cake for dessert – I’ve got to eat when I can – honest!!  Boys off to bed – for half hour reading before lights out.  Jacob reading a story from school about a family escaping Germany during the second world war.  It is very good – and he is enjoying it and learning about it so he is going to get I am David out of th Library to read next.

Anyway – there’s the run down of what I feel is the most calm, normalish day I have had in several weeks.  It almost felt – well normal (apart from the blob)!  Hope all enjoyed their days too.

M&D time now – enjoy

Kia Kaha.