3 Too Many

T Day  =  5 (Adjuvant chemoradiation) – 25 Radiation & 37 Chemo to go this round.

Sleep – glorious sleep – I managed to get a broken but near 5-6 hours sleep last night!  Up at 5:30am still but feel like a bunch of fluffies   Obviously the 3 bro’s were in a bad head space 9 no pun intended, or sorry for the crappy day they delivered on Thursday), as woke several times during the evening with the tears freely flowing for no reason – this still fascinates me hugely as I’m not sure what thoughts/feelings are triggering them.

Fossick around the kitchen getting the days drugs lined up and ready along with brekky things ready.  Then it’s into the day drugs at 6m, next CHemo ones at 7am – these start the kidney’s hurting about  20 mins later – they’re getting quicker.  Decide to hold off on the taking of the  taking of painkillers as I’ll see what the radiation will do to me first – usually induces a headache.  I’m pleased that the drugs are nearly all gone by lunchtime as it means I have only 7 to remember to take after lunch!  In shower early as Radiation is at 8:30 this morning, so no time to dawdle around feeling sore or sorry about myself.  I just have to accept this is it now forward.

Dad – my driver for today is here ready to roll. Off we go for the last zap of the week – rock in to the room – zap,whirr – sucky music again – done.  They tell me that I may start feeling more fatigued from now on – tell them about yesterday, so they change the day till  from yesterday I might start feeling fatigued!  Ahh – got to love the adaptive nature of specialists.  They are a fantastic bunch I have so happy as.

Off to Cafe Raeward to meet the rest of PortaCare & have our usual brekky.  Dad joins us for  a coffee then heads off.  Feeling tired already after a brilliant start – really!  That bad already   Back to Logistics – another sad moment as have after 14 months got very used to our rural, airport, industrial surrounded compound.  It will be missed.  Get some wok done, but catch myself falling asleep (fortunately the others have missed it) but when I say fall asleep – it is literally eyes open, eyes closed – head dropped. Really – that quick – guess I’m in for another day like yesterday.  Bernard, Jono and I heads into the new building, but I keep falling asleep, so arrange to get collected outside the cordon – not safe me in that state inside the Red Zone, I need to be home and resting. Sue collects me and we head home.  Nap time then for about 75mins wake to find the boys home and feel great again.  The first visual sign of the battle has appeared – with the Radiation leaving a reddish burn mark in front of my right ear – it has begun.

The Mathews family – NIck, Anna, Cameron, DJ & Oliver come over for an  F&C dinner – 3 fine young energetic lads running around with limitless energy – ahh I remember I could do that 2 months ago  For dessert we have some lovely cupcake that Cameron has made – and i am about to go and make my Milo, get my drugs and scoff down the one I left – yum.  Brief encounters today on the part of the fatigue – but also tomorrow is a huge footy wise.  If you happen to be in Halswell get to the nest at 2pm to see the Premiers take on Nomads in the first round of the Chatham Cup  – and sporting their Pink socks in honour of yours truly.

M&D time now folk – work, party, rest, sleep well – however this blog finds you today.

Kia Kaha.