3 Too Many

Howdy folks – another early start 4am!  For as tired s I was yesterday last night, I just couldn’t shutdown for the night!  And when I did managed to doze off my mind was off in very dark places about what is happening, the end, etc, etc – so I won’t be sharing – sorry.  Got up at 4am and made a milo then read some news from overnight, etc.  Manage to doze off again til about 5:45 & wide awake again!  Damnit!  Doesn’t matter anyway as first drugs are due at 6am so decide to get up and head to gym.  Drug up and have an hour nearly in the gym – got to try to stay fit some how, though realise my new physical limits.

Feeling great and time for the Chemo drugs. This time i start to feel them – in that kidneys start to hurt a bit about an hour after them. Apparently this is normal and will b as the body starts building up the drug levels in my body.  I have to also up my water intake to help the dehydration that is a side effect of the Radiation treatment – fantastic – I’ll need to memorise every damn toilet between home and the hospital.

Dad comes over to visit early, plus he is my driver today to radiation so good to see him.  We have a good catch up and I explain the whole treatment plan and process to him.  He was just needing to get it all straight.  Show him the chemo drugs – he thought I had to go to hospital to get them and also be hooked up to a drip.  So all clear on the process.  Dad leaves me to do a couple of things before coming back to get me for the hospital visit.  Radiation is quicker today as they jut need to lock the head in, line up the lasers – then fire away.  Music is not the best today so might take my own sounds tomorrow – need to choose a couple of good zapping type songs. Especially seen as I can’t deliver any one liners to them as the mask stops you speaking – OK enough already with the smart comments with that revelation – (I can hear you saying they have found a way finally to silence him).

Off then to lunch at the Boatshed as I need to eat so I can take my next lot of drugs and before the next appointment – yep Oncology life at the hospital is very much appt after appt.  Dad protests that he is not hungry and doesn’t eat lunch so we’ll just go into the hospital cafe for one – I explain about the need to eat, he insists he doesn’t need too – “Dad – it’s about me! I must eat to be able to take my drugs  and I want a toasty from the Boatshed” God I sound like a spoilt brat!  But it got through to him what I was saying.  Lunch is good and we have a fat hat about lots more until Sue arrives for the second appointment. 

The next appointment is with the Radiation registrar to make sure that all is going OK (its only day 2 but guess they have to start some day).  Goes over everything again, to make sure that we haven’t forgotten anything.  Cover off the need to rest when tired and keep fluids up, etc.  The need for 24 hour supervision is discussed and I will be allowed a bit more freedom – yay.  Also headaches will start to increase too – but i can cope with that :-(Quite apt that he covers off the need for rest as get home then and literally feel as if someone has pulled the drain plug on my energy levels.  I fade from fine to flat in about 20 mins – it is a terrible feeling. So I crawl off to the downstairs bed for a nap.

Up in time to get dinner ready as Tuesday is footy practice day the rest of  the family are out so make myself useful.  Yummy if I say so myself – haven’t lost the art.

Home under the care of my youth careers tonight as Sue and Roh have gone to the movies.  Plead with the boys  to settle down as doing blog, and phone keeps ringing and drunk water keeps passing, and the energy drain is open again and head is hurting – feeling ganged up on a bit.  So if I missed your call tonight or the likes, then sorry – I was busy not coping. 

With that said – I feel it is M&D time and then try to get some sleep away from the dark places.

Kia Kaha.