Monday 16 April Ramble
April 16, 2012 — HeadlessWell you’ll be pleased to know that there is no philosophical waffle to start today’s ramble.
Had a good day all round – apart from a sore head again this morning which is a feeble excuse for skipping the gym really! Ok I promise I’ll get in there in the morning – considering I’ve just scoffed down a whole white choc easter egg – Doh! It wasn’t me – it’s the Steroids! – Honest they doubled them again today to try to get the head pain eased & to see if I can get the use of my left hand back. The good news is of so far tonight It seems to be slowly on the improve – right hand fingers crossed it continues;-)
Work was fantastic today – my fantastically wonderful friendly minders aka work colleagues in Portacare cabin 2 gave me a present of a photo album to store memories in – I managed to hold back the tears – but very very touched by the idea. Guess I’m going to have to suck up my biggest dislike & get my photo taken – ahh really do I have too??
Also the battle with the Radiation team continued not sure if mentioned it but treatment start date is set to be Monday 7 May – another 2 very long weeks on from now. Meaning it will be 9 weeks then from the CT scan & if these unwanted mates are 2-3 months old that is a hell of as long time!! The case was pleaded valiantly by Sue tears & all with them about the time & getting going earlier as time is not is not on my side. We will see what Wednesdays appointment with them brings. I have an appt with the hospital Physio on Thurs arvo too.
Sent details of my case to a Neuro specialist recommended in America & also to a research specialist there that has done research into the tumor type I have so hope to hear something – even if it is so they have another name on the rarity file.
Found out that our top IT boss man will be in town on Wednesday so will be nice to catch up with him in person rather than electronically.
Had a lovely visit tonight from Tony & Jo Knudsen & family. Love the care package – thanks heaps guys 
Heading to bed soon as busy day & busy week coming up – oh & got the gym in the morning to burn off an easter egg or 2 now – damn steroids (not the muscle-building ones unfortunately more the waist building sort) – bloody annoying as I had worked hard to loose 11.5Kgs since beginning Jan till beginning March and be as fit as possible for this footy season – Murphies Law. Must will power now really getting tested!! Must not eat all food in house, must workout evenmore, must deal with head isuues, must accept can’t drink & drive – not in that order – is there anything left??? Yep forgot – Must stay alive along as I can – thats the big one – the others are a breeze really but they will also help the last one easier.
Milo & drugs (or MaD time as I call it) now.
Till tomorrow all
Kia Kaha.
April 16, 2012 at 11:23 pm
Hi mate, loving your wit, candour & honesty on all your updates & great that we are able to keep track of your progress. In your philosphical nighttime moments ever wish you could magically transport yourself back to Yaldhurst Rd for a night on the piss, riffling through all the bargains of Rubbers warehouse then on to the “youngies” for a burger & counter p**s – oops that was Gman wasn’t it. Gotta give you something to have a giggle on. Stay strong dude, take care & maybe see ya soon.
April 17, 2012 at 3:04 pm
Haha Scotty – yep they were the much younger days!!! before we grew up – well older anyway – cause for boys growing old is complusory but growing up is optional! Look at my oldman – 67 going on 24 most days. Girls just don’t understand! Don’t forget the chute driving at the racecourse too. Home to make it to the West Island when the travel ban is lifted so will get to see you all. Joh apologises for the meeting in the mall -as she was having a bad day with it all – as we do somedays – but does know who you are – think its funny running into her over there, how many Cantabs I know of in stones throw of each other in the Brissie area. Hope alls going well for you there.
Cheers.